After sickness there’s health?

Sadly, I only mean that after fever, there is no fever 🙂

I’ve been home with a fever since tuesday and I’m finally doing better and can go back to work tomorrow. The problem with a fever when you have PoTS – is you have PoTS. The two doesn’t really go well together.

While being home and keeping the sofa company, I’ve eaten whatever I wanted to. I let go of the strict diet I need to stick to and just had what ever I felt like. My body is NOT happy with me now…
Tomorrow, or rather now, it’s back to normal again! I have my notebook next to me and I think the week that’s coming will go great… NOT! Why? Here’s why:

For the next few months, probably for the rest of the year, it will be hell. I’m not even joking! I mean HEEEELL!!
When you have PoTS, there are certain things you can do to help yourself. What these hings are depend on you and how bad your PoTS is!
Now, I work 50% – 4 hours/day and 5 days/week. And you know what – it’s hard! It’s really, really hard! I have to plan EVERYTHING. Every hour of every day!
I’m not saying it isn’t worth it, it is, very much so! But it’s exhausting. However, this is what I have to do to help my body, and to help my PoTS, and to be able to work those 4 hours a day!

So I plan my days. I go to bed at a certain time, even if I’m free the next day. I only eat certain things and avoid lots of food (that I love) and I only eat at specific times. I do some form of cardio every day and my strength training is currently taken care of at physical therapy. When that is over, I need to keep going at my regular gym.
I also need to plan my free time. What days can I meet other people to do something? When can I go shoping? How many hours do I have each day to do something? Etc.

When I plan everything, I know that I’m giving my body the best chances to cope. And belive me, it needs to cope with a lot of crap…
This way of living is still new to me. And it will take some time fo me to start feeling ok with it. Some people have said it took about 3 months of pure hell before their PoTS started to accept the changes. And well, I’m in hell. So I’m hoping it will take about 3 months for me too 🙂

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Jeas Fit Challenge, part 3

To get healthier when your body isn’t well is not easy. That’s just the way it is. I know that I’m up for pure hell. I’m not kidding, that’s how it will be, that’ how it always is when I need to start something… I’m 33 and my body STILL HASN’T adjusted itself to working!! I work 50% (4 hours/day) and that’s what I can manage. I’ve tried more but, oh honey… that wasn’t pretty at all…

Somehow, I need to make myself go to the gym more. Every damn day. I won’t be lifting weights everyday. No, it’s as follows:
MondayZumba (as much as my body can manage, medication up by the leader just in case).
TuesdayBodybalance. A bit nicer to my body. Bloodpressure will drop, but that’s ok, I haven’t fully passed out yet. Is it odd that I’m super happy that I’ve only lost my eyesight and hearing during class? Well, that’s what it’s like being me 🙂
Wednesday – rest.
ThursdayCardio, right after work. (The gym is in the same building as I work.)
Friday –  Cardio, right after work.
SaturdayCardio in the morning after my bloodressure has had a chance to settle and stay at what’s normal for me.
SundayCardio in the morning after my bloodressure has had a chance to settle and stay at what’s normal for me.

I will do Yoga at home to help relax my body and wind down. Once it’s back at the gym (none for the summer), I will go back to class there 🙂

The hardest thing will be to force my body to do it. I will be so tired and exhausted and feel like crap. I’m hoping that since I do most straight after work I will be able to have some sort of an “ok” spare time after that. If not… well, what can I do? My health is the most important thing.
A lot of people with POTS say that they do their cardio every day and it’s always the same hell, but that hell will soon feel normal. Just as the hell we always live is normal to us. It jsut sucks never being able to do thing with others because you’re too tired or your bloodpressure is too bad oryour pulse is at 15 and you need o wait and see if you need to go to the doctor or not. Or having an ok puls and then have it go from 55 to 200 every damn time you try to stand up. (I can’t tell you how many times I’ve gone between rooms at home on all 4 because I don’t want to pas out and hurt myself.)

So:
– LOTS of water.
– Salt.
– No carbs before gym.
– No large meals in the hours before gym.
– No warm meals at all before gym.
– No warm clothes (as always, dress to be a bit cold…).
– Sleep for about 10 – 15 hours/night.
– Eat no more food than the size of my fist at a time.
– Don’t stretch before working out!!!
– Not laughing too much.
– Listen to even the smallest signal from my body.
– Be careful.
– Don’t move to fast during the day.
– A minimum of 15 minutes of warm up before I do anything.
– No, no, no, ABSOLUTELY NOOOOO STRESS at all!!!!

I’m not even kidding with that list. All of it is so important if I’m going to be able to make it! Even the part about laughing, if I laugh too hard/too much my bloodpressure will drop! I have passed out because of this and IT FREAKED ME OUT!!!! Now I know how crap like that works so… But still…
The above list will probably have things added as I go. I can’t remember everything right now, I’m too tired. (I’m sitting next to the window and I just realized the sun came out and that’s why I’m suddenly getting so tired and exhausted. Yeah, that’s my life. My heartrate is increasing more and more and I need to get more water now!)

I’m gonna write more about my little challenge as I go. I won’t write much about my health, but I wanted to make it clear to people so I can just refer to these 3 posts when there are questions. I don’t want the focus to be on that, I want the focus to be on my progress, my goals, my challenge!
Ever now and then I will write a post about how it’s going in concern to my POTS and the rest, but that’s probably about it.
Should you have any questions, just ask!

On instagram, I will use #jeaswellness & #jeasfitchallenge if you wanna have a look there too. You can find me under @jeas_wellness 🙂

Jeas Fit Challenge, part 2

Ok, so my plan is to get a fitter and better body than I have now. Since I have afew things standing in my way from that, I need to really, really Think about HOW to do that. And that’s why I didn’t go to bed until 1am last night. Some Saturday night, huh 🙂

What exacly does stand in my way? I have:
– POTS – Postural Ortorstatic Tachycardia Syndrome (unable to take medication for it).
– Siunstachycardia (medication for it).
– Syncope (no medication).

Why is that rubbish?
– My puls can suddenly race.
– My pulse also doesn’t always rise as it should when I try to work out.
– I’m constantly tired.
– I need to drink lots of water.
– I need extra salt in my diet.
– I fall asleep if I eat the wrong food/heavy food/lots of food.
– My bloodpressure is crap in the morning and I pass out easily.
– I can’t tolerate heat as well as healthy people.
– When I get too warm I pass out.
– If the airpressure is bad I can pass out.
– When i work out/take fast walks I get warm and that will make my bloodpressure drop and I pass out, exersice intolerans, get it now? Not as strange as it sounds 🙂
– I need extra/lots of breaks at work.
– I ned extra/lots of breaks when out Walking.
– I need extra/lots of breaks when working out.
– I need to drink cold water no matter what I’m doing.

That list can o on forever, but you get the idea. It sucks.
I’ve started lots of different workoutroutines, but I haven’t been able to keep it up. The reason for that is that if you don’t have enough motivation to handle having every single symptom you can possibly have from your sickness/syndrome, there’s no way you’re gonna keep it up!! That’s just the way it is.
I’ve gone for walks. That’s it. And the only reason I didn’t have motivation is because I didn’t have anything waiting at the light in the end of the tunnel. Nothing motivating me. A bad gym (with no air…). But now I do. No I have exactly what I need waiting for me!

My goals, divided in to 4 Groups.
Mental goals:
– Feel good about myself.
– Have a genuine smile on my face.
-Be happy!
Activity goals:
– Be able to ride a bike for 30 minutes.
– Do handstands at Yoga.
– Do cardio every day (and I need that to help me with my POTS they say, yikes).
– Use the rowingmachine at the gym for more than 2 minutes.
Food goals:
– Eat well (already started).
– Veggies (already starte).
– Fruits and berries (already started).
Physical goals:
– Less problems with finding clothes.
– Help with a boobjob.
– Be fit.
– Less problems with my back, my knees and my hips.

Hang on for part 3.