ans, autonoma nervsystemet, autonomic nervous system, dysautonomia, geek, harry potter, hälsa, health, hogwarts, i would rather be at hogwarts, illness, invisible illness, nörd, nerd, osynlig sjukdom, osynligt sjuk, postural orthostatic tachycardia syndrome, POTS, potterhead, sjukdom
I am making a “HOW TO” book of survival for my POTS. You know, just because 🙂
I am currently in a very, very bad place when it comes to my POTS, and at times I need to be reminded of what I can and can’t do. Not that I don’t actually know it, but my brain doesn’t want to function. It doesn’t want to think – “brain fog” they call it. Yeah, it’s no fun. So I’m making my “HOW TO” book to always have my reminders of what’s good, what’s bad, tips and tricks, what food is ok and what to stay very far away from.
I’m the kind of person that will forget about the bad things when a few weeks have passed. Then I will be all like “wait, why haven’t I done/eatin/thoguht of this?” and do what ever “this” is and yeah… then I remember *inster crying from laughter emoji here* Every time. And that goes on for quite a few times until I finally remember it. But then when the brain fog gets really bad, it just goes away again.
My main struggles right now is to eat, to walk, and to keep my mind focused. This is why I felt making my book was a good idea. I, however, forgot to think about how much I can’ think of right now 🙂 I’m simply not focused enough. So I’m writing down the things I can, then I leave enough space to add more later. I also google a lot 😉 There’s a lot of “oh, right, how could I forget about that?” going on in my head 🙂
I need to keep cool (it is currently about 30*C in the shade here…), drink lots and lots of water, and take it easy/not stand up if it can be avoided.
There’s a lot I need to think about to feel as good as I can. But that’s for another day 🙂 Right now, this is on the top of my list.
Keep looking up ❤